World Cerebral Palsy Day

Welcome to world cerebral palsy day! I reminded Gretchen this morning to wear green and she loves her mother and went off to school donning green. Shawn, on the other hand… “I am wearing green, black is the presence of all colors”. So yeah, I said some not so nice things about his sense of humor and then I told him he better go to work to earn the money to pay for his wife’s acute late-stage cerebral palsy eye surgery. In less than a month (November 2), I’m scheduled for cataract surgery. Back at the end of May, early June, I noticed I couldn’t see out of my right eye. Of course I put off going to the eye doctor until August. He was quite surprised when he saw I had cataracts, telling me I’m 15-20 years too young for this to be age related. Thanks – I’m pretty sure it’s the lovely premature aging they say comes with cerebral palsy. Of course after watching The Sum of All Fears anything CP related is now referred to as my acute late-stage cerebral palsy. And I told Shawn this was going to bite us in the wallet. He went to the consultation visit with me and yeah the price tag gave him sticker shock. I also learned there is cataracts developing in my left eye as well and they wanted to do surgery two weeks after the right eye. But we’re holding off on that one – 1) because the surgery would be on my birthday and I don’t want to have surgery then and 2) they can correct the vision in my left eye to 20/20 with glasses so I don’t see doubling the price tag to see again when we don’t have to. I’m also curious as to how effective artificial lenses will be. Right now everything I see in my right eye is either a big white blur or a big black blur, depending on the ambient lighting.

Wear green to support
Cerebral palsy research
Help make lives better

Accentuate the Positive

Accentuate the Positive

Welcome to #WorldCPDay. Sunday Shawn and I attended the Bare It All Expo at 9 the Gallery. It was well attended and the women who spoke about self love when confronted with impossible body ideals to live up to were quite inspirational.

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Me and My Poem 9 the Gallery

In honor of #WorldCPDay, please visit the website for the new United Cerebral Palsy center in the Garfield District, downtown Phoenix.

World CP Day

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Bare It All Hosted by Jaclyn Mo

The Bare It All Expo is this Sunday October 2nd at 9 the gallery from 4-6pm. So why is this post titled World CP day? Simple World CP Day is October 5th and my poem will be in the Bare It All Expo a few days prior.

 

 

Bare it all poem
did not try to reflect self
living with CP