Cerebral Palsy Awareness

emerald color
supports cerebral palsy
keep calm and stay strong

March is cerebral palsy awareness month and the 25th is CP awareness day. But you would never know I have not worn the Emerald Isle color in years. On St. Patrick’s Day I’ve been known to wear orange. 😉 I grew up Protestant and I enjoy poking fun at Shawn’s Catholic upbringing – not to mention his grandmother was Irish. How does a man with Irish roots spell his name Shawn and not Sean? That’s a funny story. His grandmother’s maiden name was Barry. When she was pregnant with Shawn’s dad, she wanted to name him Barry if he was a boy and Shawn for the middle name. Cele (Shawn’s grandmother) wasn’t sure about the Irish spelling for Sean. She asked her neighbor who was straight off a boat from Ireland. The neighbor told her, S-h-a-w-n. At least this is the story I’ve been told. I think the neighbor liked the anglicized spelling over the Irish.

Well I’ve known that green is the CP awareness color for a couple years now, but I haven’t gotten a green shirt until this year. It just came in the mail the other day. When I wear it, I’ll be sure to snap a photo. I have the SunDevils reward app from ASU. You can log on everyday and earn pitchforks. As the pitchforks accumulate, you can redeem them on ASU merchandise. I saw they had Pat’s Run t-shirts from a couple years ago in the reward store and they were green. It says, Live your dash. I like the message as dash doesn’t necessarily have to mean run. Just like Colleen’s Weekly Poetry Challenge – there are plenty of synonyms to pick. Okay but really for green there aren’t many I like probably another reason I don’t have much of it in my wardrobe.

#NaHaiWriMo – March On

hosking

My Buffalo Children’s Hospital Photo

Frail physique
mind like a steel trap
cerebral palsy

Hello and welcome to March – Women’s Herstory month and Cerebral Palsy Awareness month. Since I fall into both categories, this should be interesting. When I found out February was #NaHaiWriMo, I stumbled on the Facebook page; and they actually have daily prompts for haiku all year long. Finally figured out where and how to contribute my haiku. It is not one of the most user friendly pages I follow. But I saw today’s prompt was frail and thought it would make an excellent intro for #cerebralpalsyawarenessmonth

My Herstory – a long time ago in a city far, far away (40 years ago in Buffalo, NY), I was sent to the children’s hospital for physical therapy for my CP. According to my mother, the above photo was taken at the hospital as part of my patient record. I hate the picture, but it’s still here. The downfall of marrying your high school sweetheart; Shawn took a bunch of old pictures of me and made them into a collage for my high school graduation. It did offer inspiration for my Golden Pixie poem in the My Mane Memories series on Silver Birch Press.

Here are 31 Cerebral Palsy facts in an article written by Nicole Luongo