#NaPoWriMo 2022 Day Twenty-three

Multiple Braces

My right side spastic
growing up with CP
clunky and unwieldy
my night brace
would beat up
my left leg
rolling over in bed.
Then the day brace
made of plastic
to keep my right foot
growing properly
better than the boot
easier to sleep
not good to race
or even keep pace
run, jump, or leap
no longer for me


NaPoWriMo PromptAnd now for our daily (optional) prompt. Today I’d like to challenge you to write a poem in the style of Kay Ryan, whose poems tend to be short and snappy – with a lot of rhyme and soundplay. They also have a deceptive simplicity about them, like proverbs or aphorisms. Once you’ve read a few, you’ll see what I mean. Here’s her “Token Loss,” “Blue China Doorknob,” “Houdini,” and “Crustacean Island.”

Good afternoon and welcome to day twenty-three of napowrimo where I fiddle with rhyme. The #HaikuChallenge word today is brace and it made me think about my old braces. I’m not sure I capture Kay Ryan’s style well. Here is a haiku I wrote last year about me and why it was a bad idea to play wearing my leg brace.

Jump rope at recess
without removing leg brace
Snaps under pressure

#NaPoWriMo 2022 Day Fourteen

My First Triumph

Shot – Interior bedroom. A little girl sits up in bed with a sneaker in her lap, fiddling with the laces.

Right hand
Appears useless
Shoelace slips through fingers
Kindergarten starts tomorrow
Action

It’s late at night, but the little girl is frantic. She’s worried about failing her first day of school, because she can’t tie her shoes. After numerous attempts, she finally succeeds at tying the laces and can go to sleep untroubled.

NaPoWriMo PromptAnd now for our (optional) prompt. Today’s challenge is a fun one: write a poem that takes the form of the opening scene of the movie of your life. Does it open with a car chase? A musical number? A long scene panning across a verdant plain? You’re the director (and also the producer, the actors, the set designer, the cinematographer, and the lowly assistant that buys doughnuts for the crew) – so it’s all up to you!

Good afternoon and welcome to day fourteen of NaPoWriMo where I’m in charge of telling my life story, but where should I begin? Shawn wasn’t any help. Gretchen came up with a great opening scene – Your death, I’ll bet you’re wondering how I got here. One’s life does ultimately tell the story of her death. But I couldn’t get anywhere starting at the end because I have not reached it yet. I didn’t want to start at the beginning, because I have no real memory of it. Then I realized if anyone were to make a movie of my life, my struggle with cerebral palsy would be at the forefront. Why not open with the memory of my first triumph?

Of course I worked this out after I toyed with other firsts. 😉

A Roll in the Hay

First time
Two teenagers
Nervous and excited
Explore virgin territory
Hayloft

Okay not exactly the first time I’ve alluded to something my husband borrowed without any intent of returning it. And yes, I have to get off the cinquains.

#NaPoWriMo 2022 Day One

A Chance Encounter

He met her at a friend's birthday party.
She was not invited but sat in a corner, pretending to read. 
He would call it serendipity and claimed 
it was love at first sight. 
He couldn't take his eyes off her. 
His determined course of action - to know the mysterious girl 
reading alone in a corner. 
So he called the hostess of the party. 
She, in turn, set him up on dates with her friends.
Being a nice guy, he obliged despite the fact 
they were not
the girl he longed after.
Then one phone call, he became emboldened;
"Don't you have a sister?"
"Oh, yeah! Roni, someone wants to talk to you."
The sister looked up confused as she was handed the phone;
"Hello?"
"Hi, would you like to go out?"
Since she had never actually been on a date, 
the mysterious girl answered, yes. 
Once the details were worked out,
the girl was curious - 
who would be interested in dating her?
She asked her sister.
"He is one of my boyfriend's neighbors. 
He saw you at the birthday party."
She could not recall what the boy looked like, 
so before their date her sister drove her over to the boy's house. 
His mother informed them he was at track practice. 
Her sister knew where the track was, and they
drove over to get a glimpse of the strange boy 
who asked a crippled girl out on a date.

The strange boy and mysterious girl 30 years later

NaPoWriMo PromptAnd last but not least, our optional prompt! I got this one from a workshop I did last year with Beatrix Gates, and I’ve found it really helpful. The prompt is based on Robert Hass’s remarkable prose poem, “A Story About the Body.” The idea is to write your own prose poem that, whatever title you choose to give it, is a story about the body. The poem should contain an encounter between two people, some spoken language, and at least one crisp visual image.

Good morning readers and welcome to the first day of NaPoWriMo 2022. Where I write about my crazy husband. Once upon a time, when we were both still in high school, the boy saw me and decided he was going to ask me to his senior prom. First he had to figure out how to officially meet me. I know my long time readers know I’ve written poems about my sister and me watching Shawn at his track practice. This poem has taken up enough of my time this morning. I need to clean my house to get ready for our company this weekend. Thank you for reading my attempt at day one’s prompt.

#NaPoWriMo – Early Bird Prompt

Five Months Ago - Before 48

Acute early-stage geriatrics
Opaque vision  
              turns my world milky white
Cataracts blind my right eye
If to be "Elder" - means most pain

Youngest patient - not even fifty
Surgery to see clear again
Hits hard my pursestrings
I'm old enough, today 

Cataract Surgery November 2, 2021

NaPoWriMo Early PromptDickinson is known for her elliptical style, unusual word choices, and mordant sense of humor. Over the past year, I’ve experimented with writing poems based on, or responding to, various lines from her poems. Today, I’d like to challenge you to do the same! Here are a few lines of Dickinson’s that might appeal to you (the slashes indicate line breaks)

Good afternoon readers! And welcome to the early bird prompt of NaPoWriMo. And yes, as my loyal readers know I had cataract surgery at the end of last year about two weeks before my 48th birthday. So the lines from One Year Ago – jots What? spoke volumes. No one ever told me about the pre-mature aging that corresponds with cerebral palsy. I mean I really feel like an “Elder” – the eye doctor who first saw my cataracts in August was amazed. He remarked I was 15-20 years too young. Then the surgeon informed I was his youngest patient; followed by, You can no longer drive at night. On the positive side of all this – I do not drive at all because of the cerebral palsy so it wasn’t a restriction the surgeon thought it would be. Thanks for reading my first poetry attempt for 2022.

Herstory – Cerebral Palsy Awareness Month

This March I have decided to try to focus on cerebral palsy for the #haikuchallenge word on Twitter. So far I’ve been able to – granted they are not the greatest poems but they’ve all used the daily @baffled word and the correct syllable count.

Learning how to walk
Life with cerebral palsy
Limbs bend awkwardly

March photo contest
Cerebral palsy spotlight
Thank you for voting

Hollywood Star

Make a difference
This month brings awareness to
Cerebral palsy

March – official month
Focus on brain injuries
Cerebral palsy

Those are the four thus far. And yes, I snuck in my photo for the cerebral palsy alliance research foundation contest. Any long time readers will recognize it is the photo of me I used for the silver birch press Same Name series.

Five More Days Until My Birthday

Me at home after cataract surgery

Good afternoon – It’s about a week and a half after my surgery. The vision in my right eye was pretty instantaneous and then they taped it closed. So yes, clear distant was immediate; the close up vision is still working itself out. I have found I can read if I put the screen or book at arm’s length; otherwise, my left eye is doing most of the reading work. I’m thankful the left eye can still see well with glasses because there were a few things no one mentioned until the final pre-op visit. 1) I can no longer drive at night. The surgeon appeared a little hesitant at the pre-op – I don’t want to tell you you are my youngest, but yeah you’re my youngest patient. This was followed by, You can’t drive at night anymore. I laughed, Well since I don’t drive at all that would probably be a good idea. Needless to say this relieved the surgeon because most of his patients have already stopped driving at night and he wasn’t looking forward to telling a 47 year old she can’t drive at night.

The second thing I found out at that visit was I could not bend over for a week. Hello, I have CP and do not have the balance to bend at the knees. I spent an entire week not being able to do anything. I’m still not allowed to do any strenuous activities, which again with CP is very restrictive because I use more energy to do things. I did empty and reload the dishwasher the other day. When Shawn came home he yelled at me; I was like I can bend over now and emptying and reloading a dishwasher isn’t that taxing. I am still not lugging around the vacuum, mop and bucket, or laundry baskets. And yes I’m going a little stir crazy just sitting around the house. Imagine if all these restrictions carried on for a month if I scheduled my left eye two weeks after my right. Since my 48th birthday is after the two week mark of my surgery, I also wanted to be able to celebrate it.

One thing I have been able to do is sit and write haiku so at least I’m not twiddling my thumbs all day.

Do not bend over
Eye needs enough time to heal
Sit and write haiku

Start new fashion trend
Extend usefulness of glasses
Right lens taken out

It’s okay to cry
But be careful not to sneeze
After surgery

Could see right away
But it was not long enough
Eye taped to go home

Stuck on couch all day
Housework falls by the wayside
While I recover

No strenuous work
Leaves almost nothing to do
Boredom rules the day

World Cerebral Palsy Day

Welcome to world cerebral palsy day! I reminded Gretchen this morning to wear green and she loves her mother and went off to school donning green. Shawn, on the other hand… “I am wearing green, black is the presence of all colors”. So yeah, I said some not so nice things about his sense of humor and then I told him he better go to work to earn the money to pay for his wife’s acute late-stage cerebral palsy eye surgery. In less than a month (November 2), I’m scheduled for cataract surgery. Back at the end of May, early June, I noticed I couldn’t see out of my right eye. Of course I put off going to the eye doctor until August. He was quite surprised when he saw I had cataracts, telling me I’m 15-20 years too young for this to be age related. Thanks – I’m pretty sure it’s the lovely premature aging they say comes with cerebral palsy. Of course after watching The Sum of All Fears anything CP related is now referred to as my acute late-stage cerebral palsy. And I told Shawn this was going to bite us in the wallet. He went to the consultation visit with me and yeah the price tag gave him sticker shock. I also learned there is cataracts developing in my left eye as well and they wanted to do surgery two weeks after the right eye. But we’re holding off on that one – 1) because the surgery would be on my birthday and I don’t want to have surgery then and 2) they can correct the vision in my left eye to 20/20 with glasses so I don’t see doubling the price tag to see again when we don’t have to. I’m also curious as to how effective artificial lenses will be. Right now everything I see in my right eye is either a big white blur or a big black blur, depending on the ambient lighting.

Wear green to support
Cerebral palsy research
Help make lives better

Accentuate the Positive

#NaPoWriMo 2021 Day Twenty Seven

Scar on Right Hand Surrounded by artwork by Mr. Tookles

Initial V

Scar
Between right thumb
And forefinger

After surgery
Giving hand ability
To grasp
Scabulous!

NaPoWriMo Prompt In today’s (optional) prompt, I’d like to challenge you to write a poem inspired by an entry from the Dictionary of Obscure Sorrows. The entries are very vivid – maybe too vivid! But perhaps one of the sorrows will strike a chord with you, or even get you thinking about defining an in-between, minor, haunting feeling that you have, and that does not yet have a name.

Good Afternoon and welcome to day twenty seven of #NaPoWriMo. I’m feeling much better today; boy the second shot really does pack a punch. Yesterday I just wanted to crawl into a hole and die. Thankfully Gretchen was here to keep my water glass full and my cooling towel damp. She even made me soup while FaceTiming with Robin and I heard her ask, When it says lower heat to a simmer, how low do they mean? However it was accomplished, the soup was yummy. It may have been because it was the only thing I ate yesterday though. But after finishing one bowl I actually had enough energy to get up and serve myself a second bowl.

This morning I busied myself with all the chores that were not touched yesterday and so I started the prompt a little later than usual.

scabulous

adj. proud of a scar on your body, which is an autograph signed to you by a world grateful for your continued willingness to play with her, even when you don’t feel like it.

I’m not sure I am exactly on point with the definition of scabulous, but the word spoke to me especially after how I felt yesterday. I really do adhere to the idea that scars need not define us so I’m not sure if I’m particularly proud of my scar or have just learned to live with it.

#NaPoWriMo 2021 Day Three

Make a deck of words
Spread around to play Go Fish
I cannot shuffle

Go Fish

Index cards
Spread across table
Coffee mug set aside
Poet seeks inspiration
Quiet meditation

Saturday morning
Cats have other plans

NaPoWriMo Prompt Day ThreeThis one is a bit involved, which is why I’m giving it to you on a Saturday. Today, I’d like to challenge you to make a “Personal Universal Deck,” and then to write a poem using it. The idea of the “Personal Universal Deck” originated with the poet and playwright Michael McClure, who gave the project of creating such decks to his students in a 1976 lecture at Naropa University. Basically, you will need 50 index cards or small pieces of paper, and on them, you will write 100 words (one on the front and one on the back of each card/paper) using the rules found here.

Don’t agonize over your word choices. Making the deck should be fun and revealing, as you generate words that sound “good” to you. The fact that the words are mainly divided among the five senses should be helpful in selecting words that you like the sound of, and that have some meaning personal to you. For example, my deck contains “harbor,” “wool,” “murmur,” “obsidian,” and “needle.”

Once you have your deck put together, shuffle it a few times. Now select a card or two, and use them as the basis for a new poem.

Good morning and welcome to day three of #NaPoWriMo where I wonder if McClure even knows the disposition of cats. Although it’s Saturday here so cats are not my only distraction. Before I sat down to work on this prompt I was on Twitter and used the #HaikuChallenge word to make my tweetku (a handy made up word I used in this post). And I shared my Escape Within poem @piper_center.

Saturday morning
Poetic meditation
Cats make other plans

The Grand Scheme

20841094_10155652198842421_7089370836031206546_n

The Colour of Poetry

Good afternoon everyone. I spent my morning playing with the #haikuchallenge on Twitter. I learned yesterday that July is disability pride month as it coincides with when the ADA became law (July 1990). And since most of us have been forced to slow things down thanks to the coronavirus, I thought I’d share my view of things; as I have learned it is best to work slow and steady. It takes me longer to do everyday tasks, but they get done just the same.

One step at a time
Do not fret how long it takes
Picture the grand scheme

My husband was working on a photo this morning and I told him it looks like a corona. Well as it turns out, when you google corona theses days you are inundated with news on the virus, but I finally found the definition for corona and used it for another haiku about Shawn’s photo.

E5C4DA0D-E191-407E-833A-59357206F656

Corona Areola 2020 Shawn Hosking

Play with color scheme
Irregular pearly glow
Set nipples ablaze

Yes, Shawn has a strange idea about art. And since my blog is still in Facebook jail, I can share this here as no one will see it on Facebook to lodge another complaint about my blog. Also this post is brought to you by the sound of children building their minecraft world. I did have some peace and quiet yesterday since Gretchen accompanied Robin to Liberty Wildlife to play with bunnies. Less than a month we should be off to deliver Robin to Oregon. Apparently the coronavirus has made them move the white coat ceremony to Zoom. 😦 At least we don’t have to figure out how to get back up there in September.

Scheme for alone time
Everyone stuck at home
My solitude lost